videos
on Pheochromocytoma and Paraganglioma
Find information on upcoming Patient Education Webinars here!
Education Webinar Series
Episode 31 – Recent Internal Guidelines on the Management of Carriers and Pheo Para Patients with SDH Pathogenic Variants – Dr. Karel Pacak and Dr. David Taieb
Episode 30 – The Multiple Faces of SDHB-Related Paraganglioma – Dr. Ali Alzahrani
Episode 29 – Fourth Annual Fireside Chat Ask the Doc – Dr. Karel Pacak
Special Informational Webinar – After AZEDRA: Moving Forward Together – Dr. Camilo Jimenz, Dr. Erik Mittra, Dr. Daniel Pryma
Episode 28 – We Can’t Find the Pheo: No Tumor, Yet Symptoms – Dr. Hans Ghayee
Episode 27 – Five Years Since Azedra FDA Approval: What Have We Learned? – Dr. Vineeth Sukrithan (View an important announcement about AZEDRA here.)
Episode 26 – Diagnosing Pheo Para: Properly Reading Labs and Avoiding Pitfalls – Dr. Jacques Lenders and Dr. Christina Pamporaki
Episode 25 – Somatostatin Receptor PET Imaging: Why and When – Dr. David Taieb
Episode 24 – Third Annual Fireside Chat Ask the Doc – Dr. Karel Pacak
Episode 23 – World NET Cancer Day Special: Effective Communication With Your Healthcare Team
Episode 22 – Topic Management of Skull Base Paragangliomas – Dr. Neil Patel
Episode 21 – Topic Precision Surgery – Dr. Electron Kebebew
Episode 20 – Topic SSI – Jeffrey Rodriguez
Episode 19 – Topic Disability – Jeffery Rodriguez
Episode 18 – Topic Ask the Doc/Fireside Chat – Dr. Karel Pacak
Episode 17 – Topic Navigating Insurance & Financial Toxicity – Joanna Fawzy Morales, Esq.
Episode 16 – Topic Radiopharmaceutical Therapy – Dr. Erik Mittra
Episode 15 – Topic Pediatric Pheo Para – Dr. Steven Waguespack
Episode 14 – Topic Pheo Para & Pregnancy – Dr. Irina Bancos
Episode 13 – Topic We Have a Genetic Mutation, Addressing Family Dynamics – Samantha Greenberg, GC
Episode 12 – Topic Ask the Doc – Dr. Karel Pacak
Episode 11 – Topic I Have a Genetic Mutation, Now What? – Samantha Greenberg, GC
Episode 10 – Topic Pheo, Para & GIST – Dr. Jason Sicklick
Episode 9 – Topic Pheo Para Research Update – Dr. Rory Clifton-Bligh
Episode 8 – Topic Manifestations of Pheo Para – Dr. Camilo Jimenez
Episode 7 – Topic Pheo Para Surgery – Drs. Michael Yeh & Masha Livhits
Episode 6 – Topic COVID-19 & Pheo Para v.3 – Drs. Justin Annes & Karel Pacak
Episode 5 – Topic: COVID-19 & Pheo Para v. 2 – Dr. Karel Pacak
Episode 4 – Topic: COVID-19 & Pheo Para – Drs. Justin Annes & Karel Pacak
Episode 3 – Topic: Pheo Para Genetics – Dr. Lauren Fishbein, UC Health, Download slides
Episode 2 – Topic: Biochemical Testing for Diagnosis – Graeme Eisenhofer, PhD & Jacques Lenders, MD, PhD, FRCP, Download slides
Episode 1 – Topic: Metatastatic Pheo Para – Dr. Karel Pacak, NIH, and moderated by Pat Collins, NBC4, Washington, Download slides
2022 Virtual Pheo Para Conference
(subtitles in multiple languages available!)
The Pheo Para Universe from A to Z – CRASH! Course in Pheo Para Superheroes
The Incredibles: A Phearless Phamily Story – Pheo Para Genetics
X-Ray Vision – Imaging for Pheo Para
POOF! WOW! – It’s Gone! Pheo Para Surgical Treatment
Treating our Small, but Mighty Superheroes – Pheo Para Pediatrics
Living With Not-So-Super Symptoms – Adrenal Insufficiency After Bilateral Adrenalectomy
The Phuture for Pheo Para Superheroes – Clinical Trials & Research on the Horizon
The Pheo Para Superheroes Have Spoken – Listen Up! – Data Presented on SCOPPE Patient Survey
Wow! Ask the Pheo Para Superhero Whizzes – A Q&A Session