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NEWS + EVENTS

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Phearless (and Phriends) in DC

Education Webinar Series: Recent International Guidelines on Management of Carriers and Pheo Para Patients with SDH Pathogenic Variants

2024 Volunteer Appreciation Week

Bessie Yang Lewis Joins PPA Board of Directors

Pheo Para Alliance Gala

PPA Announces Collaboration with SDHB Pheo Para Coalition

Metastatic Survey Results

Meet Us in DC For Rare Disease Week on Capitol Hill

June Monthly Peer Support Meeting

May Monthly Peer Support Meeting

April Monthly Peer Support Meeting

March Monthly Peer Support Meeting

EDUCATION

what is pheo para?

HOPE.COMMUNITY.PPA

Pheochromocytoma is commonly referred to as

“the great mimic”

because its symptoms are often mistaken for other conditions.

2%


of patients found to have adrenal masses incidentally are diagnosed with pheochromocytoma

The incidence of pheochromocytoma is


1 in 3,000

patients will be diagnosed with a pheo para


<1%

Less than 1% of high blood pressure cases are due to pheochromocytoma


given these statistics, it is considered a rare disease.

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FEATURED STORIES

people that inspire

Joe

On August 1st 2022 I was diagnosed with a pheochromocytoma on my right adrenal gland. I am a 55 year-old male living in Queensland, Australia. My pheo was quite active and found by pure luck. I went…

Dani

My journey with my Paraganglioma started near the end of 2021. I noticed I had an increased difficulty hearing out of my left ear. At times it felt there was something crawling around my inner ear, and…

Jill

My name is Jill. I’m not sure when I my symptoms first started but I know that I have had high blood pressure and a feeling of flushing for a very long time. I also had an…

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